General Health Survey Resources

Supporting the Parent Centers Who Serve Families of Children with Disabilities. Find Your Center:
‍https://www.parentcenterhub.org/find-your-center/

Provides air transportation to and from medical facilities in the eastern United States for seriously ill and injured children and an accompanying adult.
‍https://childrensflightofhope.org/

Provides similar services as GARD only they will know more about the resources and medical specialists available in China. You may call 010-675-00717 or visit their website for assistance.
‍http://www.raredisease.cn/

Arranges free travel on corporate jets for cancer patients, bone marrow donors, bone marrow recipients, stem cell donors, and stem cell recipients.
‍https://www.corpangelnetwork.org/#/home

Text HOME to 741741 from anywhere in the US, anytime. A live, trained Crisis Counselor receives the text and responds, all from a secure platform

Lists rare disease helplines for countries around the world that help people living with a rare disease find information and support. EURORDIS is a patient-driven alliance of organizations representing more than 900 rare disease patient organizations in more than 70 countries throughout Europe.
‍https://www.eurordis.org/content/rare-disease-help-lines

FCA CareNav is a secure online service for quality information, support, and resources for family caregivers of adults with chronic physical or cognitive conditions such as Alzheimer’s, stroke, Parkinson’s, and other illnesses. https://fca.cacrc.org/login‍
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CareNav is available for family caregivers everywhere, including those who live in the San Francisco Bay Area, across the U.S. and internationally.

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN.
‍https://familyvoices.org/

Free, confidential support from a real person via text, phone, or online chat.
‍https://findahelpline.com/

Topics: Abuse & Domestic Violence, Anxiety, Bullying, Dementia & Alzheimers, Depression, Eating & Body Image, Family, Gambling, Gender & Sexual Identity, Grief & Loss, Loneliness, Parenting, Physical Illness, Pregnancy & Abortion, Relationships, School & Work, Self-Harm, Sexual Abuse, Stress, Substance Abuse, Suicidal Thoughts, Supporting Others, Trauma & PTSD

Provides similar services as GARD only this alliance of three organization will know more about the resources and medical specialists available in the United Kingdom. SWAN is focused on supporting those who are undiagnosed. You may call 0300 124 0441 or visit their website for assistance.
‍https://geneticalliance.org.uk/

Provides similar services as GARD only they will know more about the resources and medical specialists available in Germany. You may call +49-30-3300708-0 or visit their website for assistance.
‍https://www.achse-online.de/de/

Provides help to patients with specific life-altering conditions. Assistance includes help with the cost of medications and travel. Please note the status of the fund for each individual disease may change throughout the year.
‍https://www.mygooddays.org/

Provides help to patients with specific life-altering conditions. Assistance includes help with the cost of medications and travel. Please note the status of the fund for each individual disease may change throughout the year.
‍https://www.mygooddays.org/

Provides financial assistance for underinsured patients living with chronic and life-altering conditions. They offer help with drug copayments, deductibles, and health insurance premiums for patients with specific diseases. The disease fund status can change over time, so you may need to check back if funds are not currently available.
‍https://www.healthwellfoundation.org/

Live, secure, crisis chat
‍https://www.imalive.org/online/

Provides similar services as GARD only they will know more about the resources and medical specialists available in India. You may call +91-9666438880 or visit their website for assistance.
‍https://www.rarediseases.in/

Provides similar services as GARD only they will know more about the resources and medical specialists available in Italy. You may call 06 4404773 or visit their website for assistance.
‍https://uniamo.org/

JAN provides free consulting services for all individuals, regardless of employment status. Services include one-on-one consultation about all aspects of job accommodations, including the accommodation process, accommodation ideas, product vendors, referral to other resources, and ADA compliance assistance.
https://askjan.org/info-by-role.cfm#for-individuals:job-seekers

Provides information to help patients and families understand and manage the costs that may be associated with cancer treatment and care, including learning where to find organizations and resources that offer financial assistance.
‍https://www.cancer.gov/about-cancer/managing-care/track-care-costs

Provides financial assistance with ground and air travel for specialized medical evaluation, diagnosis, or treatment.
‍https://www.mercymedical.org/

Provides free domestic air travel to U.S. facilities for medical treatment, second opinions, and follow-up for patients in need.
‍https://miracleflights.org/

The National Alliance for Caregiving partners with other caregiving associations and groups to provide additional resources to help family caregivers address and cope with the challenges of caring for a loved one.
‍https://www.caregiving.org/resources/general-caregiving/

24/7, free confidential support. Prevention & crisis resources for you or your loved ones. If you or someone you know is struggling or in crisis, help is available. Call or text 988 or chat 988lifeline.org

Lists programs that help people who cannot afford medications and healthcare costs. NeedyMeds has information about government programs, low-cost or free medical and dental clinics, and prescription assistance. NeedyMeds also has disease-specific financial aid programs.
‍https://www.needymeds.org/

Provides similar services as GARD only they will know more about the resources and medical specialists available in India. You may call +91 8892-555-000 or visit their website for assistance.
‍https://ordindia.in/

Lists rare disease centers in different countries around the world that offer similar services to GARD. These rare disease centers will know the resources in their own countries better than GARD does. Orphanet is a consortium of 40 countries, within Europe and across the globe. Its mission is to gather and improve knowledge on rare diseases so as to improve the diagnosis, care, and treatment of patients with rare diseases.
‍https://www.orpha.net/consor/cgi-bin/SupportGroup_AboutOrphanet.php?lng=EN

Offers nearly 70 disease-specific assistance programs that help patients pay for their out-of-pocket costs, including deductibles, co-pays and coinsurance, health insurance premiums, and transportation expenses to get to treatment. Please note the status of the fund for each individual disease may change throughout the year.
‍https://www.panfoundation.org/

Provides case management assistance for the uninsured or underinsured with life-threatening or debilitating illnesses. Services include help with the following: access to care; co-pay assistance; social security disability applications; and insurance appeals. PAF also has a National Financial Resource Directory that allows patients to find resources within a given state.
‍https://www.patientadvocate.org/connect-with-services/case-management-services-and-medcarelines/

Offers free air transportation for those receiving medical care for acute and chronic condition. Compassion flights are considered on a case-by-case basis.
‍https://palservices.org/

Provides financial assistance for patients with specific rare diseases including help with costs of medications, insurance premiums, co-pays, diagnostic testing, and travel for clinical trials or consultation with disease specialists. In addition, NORD provides links to other financial assistance resources.
‍https://rarediseases.org/for-patients-and-families/help-access-medications/patient-assistance-programs-2/

Helps patients in need gain access to distant medical care or supportive services by arranging free flights through volunteer pilots.
‍https://www.aircarealliance.org/patient-and-medical-transport/

Provides similar services as GARD only they will know more about the resources and medical specialists available in Iran. Their services are provided in Farsi and English. You may call +98 (21) 66572937 or visit their website for assistance.
‍http://radoir.org/

Provides similar services as GARD only they will know more about the resources and medical specialists available in South Africa. You may call 072 476 7552 or visit their website for assistance.
‍https://www.rarediseases.co.za/

Provides similar services as GARD only they will know more about the resources and medical specialists available in New Zealand. You may call +64 4 385 1119 or visit their website for assistance.
‍https://raredisorders.org.nz/

Provides similar services as GARD only they will know more about the resources and medical specialists available in Australia. You may call +61 (0) 497 003 104 or visit their website for assistance.
‍https://rarevoices.org.au/

Provides similar services as GARD only they will know more about the resources and medical specialists available in Canada. Their service is available in French and English. You may call 1-888-822-2854 or visit their website for assistance.

‍https://rqmo.org/

To qualify for SSDI benefits, you must:
1. Have worked in jobs covered by Social Security
2. Have a medical condition that meets Social Securities strict definition of disability (https://bit.ly/3N1uVY8)

‍https://www.ssa.gov/benefits/disability/qualify.html

The Supplemental Security Income (SSI) program provides monthly payments to adults and children with a disability or blindness who have income and resources below specific financial limits. SSI payments are also made to people age 65 and older without disabilities who meet the financial qualifications.
‍https://www.ssa.gov/benefits/ssi/

Promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
‍https://thearc.org/

Promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
‍https://thearc.org/

Provides various services, including education and financial aid, to help patients with a chronic or serious illness cover the cost of FDA-approved medications. Patients must be U.S. citizens or permanent residents.
‍https://tafcares.org/patients/

Provides medical air transport services, free of charge, to individuals who need specialized medical care that is not available to them locally. They fly individuals to hospitals and treatment centers in 26 states within a 600 mile radius of their St. Louis, MO headquarters.
‍https://wingsofhope.ngo/